On Friday March 1, 2013 I met Caroline for the first time to "cold call" the Montreal area TTP treatment centres. We were able to meet with TTP medical staff at the Royal Victoria Hospital, Hopital Notre-Dame, Hopital Maisonneuve-Rosemont, and Jewish General Hospital.
|Caroline and Sydney|
|New Patient Brochure|
We encouraged all those we met with to share our free-of-charge new patient brochure with their TTP patients. Not only does this brochure help patients and their families understand a TTP diagnosis, but it introduces them to the supportive and informative Answering TTP Community.
It was a great start to growing the Quebec Answering TTP Community to enable the Foundation to influence equal access to the most advanced TTP treatment options.
On Sunday March 3, 2013 we hosted the first Quebec Meet and Greet Foundation session. Gergana (Patient Advisory Board) and I met with local patients and supporters to share and provide peer support, explain why the Foundation exists, and how they can get involved to help answer TTP.
We are thrilled to have interest from this group to edit our French language translations, become involved on the Patient Advisory Board, organize local patient support group and information sessions, and fundraise for research.
Together we are more than the sum of each part!
Written by Sydney Kodatsky.