On Sunday, September 29, 2013 and Monday, September 30, 2013 Taryn (Charitable Programs Director) and Gergana (Patient Advisory Board), attended the Canadian Organization for Rare Disorders (CORD) Fall Conference in Ottawa, Ontario.
Both days were packed with informational presentations made by industry members (Pharma Companies), patients with different rare disorders, medical professionals and patient organization professionals.
The first day was dedicated to developing organizational excellence, which split participants into working groups that were geared towards helping patient organizations like Answering TTP Foundation learn more about; advocacy, volunteerism, patient support programs and communications both online and interpersonal. Gergana and Taryn split into different workshops in the hopes that Answering TTP Foundation could retain a wide variety of information to help the Foundation continue to grow and move forward with our goals! Some of what Taryn and Gergana learned will be seen in updates to programs such as the volunteer program as early as next week, with the introduction of our new Volunteer Involvement Form, which is a way to expedite the volunteer application process, allowing volunteers to sign up online. This will also allow Answering TTP Foundation better match volunteers based on their skill set to our many volunteer opportunities!
|Yann Le Cam of EURODIS|
To learn more about how you can get involved check out our "Get Involved" page and choose a volunteer level based on your availability.